Ehlers-Danlos Syndrome (EDS) is a group of rare, inherited connective tissue disorders caused by genetic mutations that impact the production and function of collagen. Collagen is a key structural protein found throughout the body, providing strength and elasticity to connective tissues like skin, joints, blood vessels, and organs. Due to the collagen abnormalities, individuals with EDS often experience a wide range of symptoms, including: – Joint hypermobility, instability, and frequent dislocations – Chronic musculoskeletal pain and fatigue – Soft, velvety, and fragile skin that bruises and scars easily – Slow and abnormal wound healing – Gastrointestinal issues like irritable bowel, acid reflux, and constipation – Poor proprioception (body awareness) leading to balance problems and clumsiness – Cardiovascular complications such as heart valve prolapse or aortic aneurysms – There are several different subtypes of Ehlers-Danlos Syndrome, each with its own unique genetic cause and set of symptoms. This variability means EDS can affect people in vastly – different ways, from mild to severely disabling. How Physiotherapists can help treat EDS: – Joint Protection Techniques: Physiotherapists teach patients techniques to protect hypermobile joints from excessive strain. This includes bracing, taping, and modifying activities. – Strengthening Exercises: Careful strengthening of muscles surrounding loose joints can improve stability and reduce injury risk. Physiotherapists prescribe tailored strengthening programs. – Pain Management: Chronic pain is common with EDS. Physiotherapists use manual therapy, electrotherapy, taping, and teach self-management strategies to ease pain. – Improving Proprioception: Poor proprioception (joint position sense) impacts coordination in EDS. Physiotherapy retrains proprioception through balance and agility exercises. – Education: Physiotherapists educate patients on joint protection, energy conservation, posture advice, and how to modify activities to accommodate EDS. – Conditioning: Cardiovascular conditioning helps manage fatigue and deconditioning that can occur with EDS. Physiotherapists guide appropriate aerobic exercises. With the right physiotherapy management, those with Ehlers-Danlos Syndrome can improve their symptoms, prevent complications, and maintain an active lifestyle. If you have EDS, consult a Physiotherapist.
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